Empowering Lives with SBH

HOPE-SBH is a non-profit organization dedicated to improving the lives of children living with Spina Bifida and Hydrocephalus in Ethiopia. We provide medical support, raise awareness, and empower families.

Medical Support

Providing life-saving surgeries, post-operative care, and ongoing medical support for children with Spina Bifida and Hydrocephalus.

Education and Awareness

Raising awareness through community education, training for parents, and hosting annual events like Hydrocephalus and Spina Bifida Day.

Continence Management

Empowering children with Spina Bifida to manage continence, prevent renal complications, and support social inclusion.

Waiting Place for Families

Providing safe accommodations for families traveling long distances to access medical care.

Parent Education Program

Offering bi-weekly home-care education sessions for parents, ensuring better care for their children.

Advocacy and Partnership

Partnering with organizations and advocating for policies to support children living with Spina Bifida and Hydrocephalus.

Our Impact Initiatives

Supporting Children with Spina Bifida and Hydrocephalus

Providing essential care, education, and medical support for children living with SBH, helping them thrive and reach their potential.

Raising Awareness in Communities

Educating families and communities about SBH to reduce stigma and improve early diagnosis and care.

Bringing Healthcare Closer

Ensuring access to specialized medical care for individuals with SBH, including surgeries and therapy.

Raising Awareness, Transforming Lives

Founded in 2017 by Beza Beshah, Hope-SBH was inspired by her personal journey of welcoming a child with Spina Bifida and Hydrocephalus (SBH). Experiencing firsthand the challenges faced by affected families in Ethiopia, Beza, alongside other families, established Hope-SBH to provide holistic support, advocate for better policies, and raise awareness.

The organization is dedicated to empowering communities and addressing critical gaps in care and prevention through sustainable and inclusive initiatives. Here’s how we’re making an impact:

Healthcare

Hope-SBH connects individuals with SBH to life-saving medical care, including surgeries and rehabilitation, ensuring they receive the treatment and support needed to thrive.

Education

Through awareness campaigns and partnerships, we educate families and communities about SBH, breaking down barriers and reducing stigma.

Our Team

Beza Beshah Haile

Founder & Executive Director

Yisihak Girma

Director of Programs

Bethelehem Berhane

Resource Management Director

Selamawit Mogess

Zewditu Memorial Hospitals Focal Person

Aster Bisa

Finance Assistant

Recognition and Testimonial

In July 2024, Beza Beshah Haile was invited by Bill Gates to the Goalkeepers 2024 Event, honoring her impactful work in supporting families affected by spina bifida and hydrocephalus. This highlights the global importance of HOPE-SBH’s mission.
Recognition from Bill Gates
HOPE-SBH, led by Executive Director Beza Beshah Haile, was honored with the Child-Help Award 2023 for its remarkable dedication to supporting children with spina bifida and hydrocephalus in Ethiopia. Despite limited resources and national challenges, the organization achieved the following in 2023:

- Advocated for food fortification and NTD prevention policies.
- Provided shelter to 182 children and mothers through the House of Hope.
- Distributed 400 shunts and facilitated 253 surgeries.
- Trained 60 parents in physiotherapy and 45 health workers in SBH care.
- Reached over 200 parents with support activities.
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Sarah Anderson
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Peter Oliver
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Become a volunteer

Join us in creating a better future for children with spina bifida and hydrocephalus.

Join Hope-SBH in creating awareness, providing support, and advocating for better healthcare access. Together, we can bring hope and change to those who need it most.