HOPE-Spina Bifida and Hydrocephalus

HOPE-SBH

HOPE-Spina Bifida and Hydrocephalus (HOPE-SBH) is an

association founded by parents and families of children with Spina Bifida and Hydrocephalus in February 2017.

The organization is aimed at improving the existing situation of Spina Bifida and Hydrocephalus in the country by

contributing to the prevention, treatment, and care.


Have any questions? Call Us

+251923248782

We are open Mon – Fri

08:00 – 17:00

Need support?
info@hope-sbh.org

Who we are

HOPE-Spina Bifida and Hydrocephalus (HOPE-SBH) is an

association founded by parents and families of the victims in February 2017.

The organization is aimed at improving the existing situation in the country

by contributing to the prevention, treatment, and care.


Who we are

HOPE-Spina Bifida and Hydrocephalus (HOPE-SBH) is an

association founded by parents and families of the victims in February 2017.

The organization is aimed at improving the existing situation in the country

by contributing to the prevention, treatment, and care.


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Organizational description

General objectives

Contributing to a better quality of life for Ethiopian children with Spina Bifida and Hydrocephalus and voicing their concern.

Our mission

Supporting medical service and promoting coordinated post-operative care.


About SBH

Spina Bifida, spinal cord injury, and hydrocephalus

(excess cerebrospinal fluid accumulation in the head) is a medical condition that occurs during early pregnancy days. It’s claiming the lives of too many children or leaving them permanently disabled due to lack of awareness of the general public and limited availability of the treatment. Though the condition could be treated early most of these children do not reach the age of five in our country’s context. Therefore, multidisciplinary care is needed to help them be productive members of society.



Our vision

Ethiopia is a country where the prevalence of Spina Bifida

and Hydrocephalus is low and where children living with the condition get maximal support to be productive and happy members of the community.


What we do

Provide a waiting place for families

coming from very distant places and are waiting for surgery. It also goes

to post-operative recovery to minimize the risk of wound infection.


Provide continence management training

for nurses and children living with spina bifida who are stool and urine

incontinent. It prevents renal failure and avoids children’s exclusion

socially and from schools.


We organize parents educating program in

ZMH once in two weeks to promote proper home care for the children. It

will also continue in St. Peter Hospital as soon as the pediatric

neurosurgery service started.


We organize international Hydrocephalus

and Spina Bifida day on a national level. This day was celebrated last

year for the first time in Ethiopia by the organization of HOPE-SBH and

the help of other organizations.

What we do

Advocacy and sensitization work regarding Hydrocephalus and Spina Bifida are other major activities our organization will be engaged in.


Capacity-building activities and material distribution for children with SBH and their families. Recently, our organization has a proposed project aimed at the promotion of women’s empowerment through gender mainstreaming. This will be done through the promotion of women’s participation through capacity building and skills training to be independent for 30 parents in Addis Ababa, Ethiopia.




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+251923248782


Around German Square,

200 M from Future Generation Hope school

Addis Ababa, Ethiopia

Instagram: @hope_sbh

Email: bezabeshah@hope-sbh.org

Whatsapp: +251922868051

HOPE-Spina Bifida and Hydrocephalus