Empowering Lives with SBH

Every child deserves access to education, healthcare, and a safe community. Together, we can provide the resources and support they need to thrive and build a brighter tomorrow.

Years of Impact.

Children & Families Supported

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Regions & 2 Chartered cities Reached.

Reached in Advocacy

0 M+

Raising Awareness, Transforming Lives

Founded in 2017 by Beza Beshah, HOPE-SBH was inspired by her personal journey of welcoming a child with Spina Bifida and Hydrocephalus (SBH). Experiencing firsthand the challenges faced by affected families in Ethiopia, Beza, alongside other families, established HOPE-SBH to provide support, advocate for better policies, and raise awareness.

Today, HOPE-SBH works to empower individuals, families, and communities through awareness, advocacy, access to healthcare, prevention, and disability inclusion. Through community outreach, public education, partnerships, and sustainable initiatives, the organization works to address critical gaps in care, reduce stigma, and ensure that people affected by SBH have the opportunity to live healthy, dignified, and inclusive lives.

Our programs

Neural Tube Defect Prevention

Promoting folic acid, maternal nutrition, food fortification, and public education to prevent Neural Tube Defects and improve maternal health.

Medical Care & Family Support

Providing medical care, surgeries, rehabilitation, continence support, and family assistance for children living with Spina Bifida and Hydrocephalus.

House of Hope

Raising awareness about Spina Bifida, Hydrocephalus (SBH), maternal health, care, prevention, and disability inclusion through community outreach and public education.

Advocacy & Policy Engagement

Collaborating with government, healthcare professionals, civil society, and partners to strengthen policies, promote food fortification, and improve access to quality healthcare.

Community Awareness

Raising awareness of Spina Bifida, Hydrocephalus, maternal health, prevention, and disability inclusion through community outreach and public education, while promoting early detection and reducing stigma.

Youth & Community Empowerment

Empowering adolescents, caregivers, volunteers, and families through leadership, peer support, life skills, and opportunities for meaningful community participation.

Recognition and Testimonial

In July 2024, Beza Beshah Haile was invited by Bill Gates to the Goalkeepers 2024 Event, honoring her impactful work in supporting families affected by spina bifida and hydrocephalus. This highlights the global importance of HOPE-SBH’s mission.

Recognition from Bill Gates

Learn more

HOPE-SBH, led by Executive Director Beza Beshah Haile, was honored with the Child-Help Award 2023 for its remarkable dedication to supporting children with spina bifida and hydrocephalus in Ethiopia. Despite limited resources and national challenges, the organization achieved the following in 2023:

- Advocated for food fortification and NTD prevention policies.
- Provided shelter to 182 children and mothers through the House of Hope.
- Distributed 400 shunts and facilitated 253 surgeries.
- Trained 60 parents in physiotherapy and 45 health workers in SBH care.
- Reached over 200 parents with support activities.

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Our Partners

Be Part of Our Mission

Together, we can prevent birth defects and build a brighter future for children and families across Ethiopia.